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2020.07.27 11:52 27JJuldacket Da-ting Si-tes for Married Cou-ples

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2015.02.03 10:43 AnastasiaTabitha heart broken (sri lankan & filipina love affair)

I thought it's a love story.. Meeting him for the first time... And thinking why is this guy smiling at me? Meeting him next when he told to fellow workers why they are giving me favors. Not knowing your riding in the same bus but he told ur colleagues... Sending message for the 1st time introducing yourself as my lover? Really we did fall in love or I did fall in love.
A big drama unfolded when my family knew that I have relationship with you, but I had chosen you. Not once did you try to communicate with my family.. But I didn't care cause for me it's enough I have you.. You told me before that you will be the one deciding who you will marry... That you will not say yes to an arranged marriage... We aren't same nationality... But I really expected you will not back down.
You told me you will marry me... If your family will not agree... We will elope... But how can you back down? For more than a year.. Everyday we are together aside from work time... We are together.. Every single minute... How can suddenly you forgot about these,... About me.
When the gossip reached me... I asked you and everytime you deny telling me I'm listening to them so much, that I can go with them if I want,.. When my sister heard the news she again said she will make big drama if it's proven that you got married.. And I will continue the relationship with a married guy... I told you that also but still you said it's not true
Why can you treat me so bad? In our workplace you told your colleagues your going vacation to get married... Why can't you tell me that? Why your relative in our workplace also said... The one getting married is your relative not you... Your colleagues not knowing the phone was on loud speaker and I can hear what he says... Said do you expect him to marry her?
Come February 2, 2015... The date of your supposed wedding based on the gossip,.. Since morning almost every 10 minutes I'm calling you, sending you messages but you didn't for once bother to reply... For once bother to answer my call nor call me back... The messages in facebook was seen zone mode.. I'm hurting so much.. We know like what we talked about before we will cut our relationship upon knowing that you will have an arranged marriage but you hiding it from me is hurting me so much
Is being filipina that bad? I can have another boyfriend richer than you, have bigger salary than you, more handsome than you... But no I chose you... I didn't even asked you to spend money for me. I just asked you to love me... I gave you all... But that's not enough yes I can marry another guy even if I surrendered my body to you. Not like your nationality that if the girl gave to her ex her body it will be hard for her to look for someone to love her..
But do I deserve this? Choosing another girl and not me?
My tears some day will stop... My heart will heal.. I hope you will be happy... I'm giving up now I will not asked for explanations anymore...
One day I'll get over you...
I hope you will never forget that one time a filipina lady loved a Sri Lankan guy... Treating him like a prince.. I hope one day you will tell to your fellow men that not all filipina are bad.., I hope you will love the lady you said yes to an arranged marriage
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2013.08.02 16:32 tabledresser [Table] IamA 21 year old girl with a rare tumor in my abdomen which has nearly grown to the diameter of a regulation soccer ball. AMA!

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Date: 2013-08-02
Link to submission (Has self-text)
Questions Answers
What are you studying in college? My major is Law & Society, and my minor is forensic science. I wanted to go to law school, but I have many reasons not to go at this point.
Have you been happy with the medical care you have been given? I was definitely not too happy with my care this time around. Actually, I went to my university's clinic, had a blood test, urinalysis, and X-Ray in March. They wrote it off as scar tissue and constipation. Two months later, I ended up in the ER to find that it was the same tumor I had before. Then, it took another 2 months since we found it in the ER to the time the oncologists decided what to do with it, unsure if they should just do surgery or treatment. It grew about an inch between May and July, so I imagine it grew about two inches since I was seen in March to July. I started treatment to shrink the tumor in July, but it has since kept growing. Now, my doctor's office is so kind and caring. They know me by name even though I've only been there a handful of times. It's probably because I am the youngest patient by about 50 years.
What does it feel like? Is it painful? It is actually not as painful as it looks like it would be. The worst problems I have with it are with my stomach. I haven't been able to eat as much as I should since my stomach is getting pushed upward and squished by the tumor. It also tends to press on my ribs when I slouch, so my posture has been great these past couple months.
Thanks for doing an AMA, I for one just learned about desmoid tumors for the first time and it sounds like a terrible thing to have. All the best to you! Thank you very much for learning about these tumors. It is hard to come by much accurate information about them as mine has been slightly different from what many doctors and websites say about it. My first tumor was donated to research though!
Damn, girl, you're a fighter! Is the colostomy permanent? I'm not entirely sure how those work. Are you in the process of getting the new one removed? How is your remaining kidney? What are the chances of these tumors reoccurring? Are they like neurofibromas? Really brave of you to do this AMA. Thank you very much. I had the colostomy for a year and two months while I was in 8th grade, and it was reversed right after the first tumor was removed. Many people who need to have a colostomy have it permanently, but mine was temporary because my large intestine was accidentally cut during my biopsy and needed time to heal without interruption.
My remaining kidney is currently starting to retain fluid because this tumor is putting so much pressure on the ureter at the moment. I am going to the hospital tomorrow for a procedure called a nephrostomy, a tube inserted into the kidney that will help drain that fluid out. From what I understand, the tube will drain into a little bag outside my body, kind of like a really direct catheter. I am supposed to have that for a few days until we decide what to do next.
My pediatric oncologist who treated me when I was younger said the recurrence rate for this type of tumor is 30%. Its cause is basically unknown because there are so few cases to study.
I am not sure how similar it is to neurofibromas. Fibromatosis/desmoid tumors usually either grow from a muscle wall or bone and don't do much to nerves, in my experience.
Sigh, even with a tumor you're still gorgeous. Hard not to be envious. Hope you get to feeling better! Has it interfered with your ability to do everyday things? Stop it, you! Thank you. Fortunately, I don't feel all that bad. I am still able to work and do normal things. The only things I that have changed are exercise and my wardrobe. I used to run, but I have stopped for now since it's a little painful. Also, the tumor is starting to become noticeable so I wear less tight-fitting tops.
I am a junior in college as well, and my heart sank upon reading this. I pray you will get better. I know this might be hard to answer, so don't feel obligated to answer, but what chance have the doctors give you to live? Thanks so much. No doctor has discussed my exact chance of living or not, so my loved ones and I are quite hopeful.
Also, what school do you go to and what your favorite activity there? I hope it's okay to reveal. I go to Purdue University, and I love being involved in the cultural clubs they have to offer.
Totally random comment but last year my Personality Psych prof posted Purdue's citation guide on his course website for reference and it's my go-to citation page now! Also, I hope you get better soon, University/College is enough stress without having to go through what you are! PurdueOWL? It is pretty popular for students, I suppose. Thank you! I switched to all online classes to keep my financial aid and to avoid the stress of missing class.
Thanks for answering, follow up question: What are you most excited about at this moment? Can be anything, open question. I am excited to move into my new apartment! Though I don't care for the actual act of moving all my belongings somewhere else.
I went to Purdue, too! Graduated about 5 years ago. I had a "nice" encounter with the clinic while I was there as well - although not nearly as bad as yours. They just gave me an antibiotic that made me break out in hives. Jerks. lol. Anyway, I wish you the best of luck! :) I only found one doctor in that clinic who's actually caring and worth seeing. The lady in the insurance office is also a great person. I saw her a lot when I was struggling with my medical bills, and she loves me now.
Neighbor!!! :) Are your doctors local are they in Indy? Neighbor? My oncologist is closer to Purdue, but my major surgeries will be in Indy.
I can relate to that. I hated just moving rooms in my house. lol. So tell me, how are you so fearless? I figured out the Filipina part. I am fearless because I like alliterations, and I can kill spiders by myself now.
Just wanted to say I am a college male and can't kill a spider. If your story hadn't already made you my hero, the spider killing part definitely did. Ah, just let me know if you need me to kill a spider for you! Also, thank you. I don't feel much like a hero. I just hope to teach people a thing or two about maintaining a positive attitude during troubling times.
How has your view on life and living in general changed over the past few years? My view has changed for the best. I am much more positive now, and I take time to sit and think about things I truly appreciate and find important.
This is the type of situation that makes you realize the problems you thought you had before are so minuscule. I feel like I never had anything to complain about prior to my diagnosis. Car problems, relationship problems...none of that is something to be devastated over. I tend to get a little annoyed when I see people on Twitter complaining about the smallest things, but people complain. It's what they do. Everyone thinks their problems are terrible until they get worse.
Everyone thinks their problems are terrible until they get worse. Thank you. I still cant quite find the words for it, but that was what i came up with.
This is the best way I've ever heard anyone put it. I think you're amazing. You have a great attitude and that's really important. My aunt has severe neurofibermetosis, so I can confirm that this is nothing similar. However, I would like to ask, when you're feeling down what do you do to feel better? When I am down, I play League of Legends, browse the funny part of Reddit, cook, or try to take a nap. Worrying about my illness all the time doesn't help anyone.
What is your prognosis? Is there any chance of just surgically removing the tumor or do you need to go through chemo again? No doctors have given me a reason to believe I can't get through it, so that's good enough for me. This tumor actually does not respond that well to traditional IV chemotherapy (though I had chemo before), so I have been taking an anti-inflammatory, Sulindac, to shrink the tumor before surgery. So far, the tumor has not responded to the pills, so my oncologist suggested we surgically remove a portion of the tumor to relieve pressure on my stomach, kidney, and arteries while we figure out what to do next.
Is the composition of the tumor preventing doctors from removing the entire thing at once? I'm guessing due to its size it is likely a lot more than simply cutting that thing out of there. The size and surrounding organs are keeping them from removing it all at once. It is currently compressing my vena cava, stomach, and ureter of my only kidney. Surgeons recommended shrinking it prior to removal just to shrink it away from vital parts in my body that are difficult to cut around. One surgeon even suggested that we have a transplant team take my kidney out, put it on ice to keep it out of harm's way during surgery, and put it back in once the tumor was removed. Soon, I will be getting part of it removed, so that will feel a little better before starting treatment again, then removing the rest.
Didn't that part where they called it "rare" just tickle you? Like, gee, thanks, Doc, aren't I just the toast of the fucking town? It is funny because my doctors kept saying "Oh this tumor is slow growing." And after it grew an inch in 2 months, they said that it's hard to make generalizations about this kind of tumor since there are not enough cases to study.
When you get this tumor removed, how will your organs function? Like, will your kidney get better? Will you be able to have kids some day? That type of thing. It's hard to say how normal everything will be after this. I sure hope my kidney returns back to its happy self after this is all said and done. I am really unsure of how my colon will be after the surgeries. I very well could need another, possibly permanent, colostomy, but that's all speculation. As far as having children goes, I kind of doubt I will be able to have any due to all the surgical disturbance that's occurred in my abdominal area. It hasn't been discussed in depth at this point, but I will be asking my doctor questions like this soon!
How was it dealing with the tumor when you were in your teenage years? Did your friends know about it? Or did you have to take ridicule from other people. It was very weird to have the tumor in middle school. Everyone in school kind of knew about it but didn't understand. I barely understood what was happening to me. They started rumors that I had cancer or died while I was out of class. No one made fun of me or gave me a hard time as far as I remember. The only tough part about it was having a colostomy in 8th grade. I couldn't get close to anyone to hug them. I had to wear long and loose shirts. I had to hold my arm or hand over that spot on my abdomen during class so no one would hear it. I also had to empty and change colostomy bags during school. One of my friends accidentally touched it through my shirt once and the look of sadness and concern in her eyes was awful. I am incredibly grateful I don't have that anymore.
What did you get as your wish? A laptop, TV, ipod touch, Wii, TI-89, dvds, games, ipod dock, and dinner at Outback Steakhouse with the woman working for Indiana Children's Wish Fund. There may have been more, but I fulfilled the wish at 17 and can't remember it all right now.
I'm terrible with figuring out what to say in situations like this...but your'e a trooper and you've earned my admiration! can i send you pizza? Hey, thank you! I may forget, but yes, if you really want to! I am usually the one to feed people, but that is a kind change of pace. I will have to find out when my surgery is and whether or not I will be able to eat anything while admitted into the hospital.
I volunteer in my local pediatric cancer center... I'm sorry to hear about your condition. I must ask though, you state a diagnosis of fibromyalgia on top of your tumor. What affect does fibromyalgia have on your condition and the treatment of your condition? Also this next question may sound strange however I have to ask because of the debate even in the medical community--do you believe fibromyalgia exists? I suppose with the abdominal tumor you have blood donations or marrow donations don't help do they? That is a wonderful thing to spend your time doing. :) I don't recall saying anything about fibromyalgia. My tumor is called fibromatosis, though. I wouldn't say it doesn't help to donate marrow or blood. I had a blood transfusion when I got my first tumor taken out, and I will always be an advocate for donating blood, though I have never been able to do so myself. I only weigh 100lbs..
I'm sorry that's what I get for reading without my glasses on. You are right... I read that sentence as fibromyalgia AND a Desmond tumor... It's nice to know blood helps.. I have a double red appointment on Monday That is no problem. Donating blood is always a good thing, amd I really wish I could do so to pay it forward.
How many people have mistaken you for being pregnant? None in real life. I wear loose clothing. One in reddit life: nickylee3.
If you ever find yourself in need of a ride to see a doc or treatment and are stuck I live in Lafayette. You can DM me! Seriously. Do you do your chemo locally? I am at the Cancer and Blood center every eight weeks here in Lafayette getting my RA treatments. That is too kind and unnecessary but thank you for the offer. That is so nice. I am sorry you have to go through that. I have a feeling I am at that place you go to right at this moment!
I wish you so much good luck today and will be sending positive vibes and prayers your way. What was the wish you chose to be granted? As awesome as you hoped it would be? Keep your head held high - you are a beautiful person inside and out. Thank you very much! My wish was an "electronic shopping spree." I got to pick out a laptop, tv, Wii, games, DVDs, iPod touch, iPod dock, and more.
Does your family have a history of cancer? This type of tumor is benign. It just had a tendency to grow quickly and be mean to its surroundings. My family does have a history of cancer and potentially this tumor on my mom's side, but my older Filipino family didn't really believe in going to the doctor. Also, my mom's interpretation of our family's history of tumors and cancer has been vague as she is 100% Filipino and never really dealt with it herself.
Was your lifestyle relatively healthy? etc. My lifestyle was relatively healthy. I used to go to the gym, walk around campus, not drink much, and never smoked. I just never was able to eat much and probably didn't eat the healthiest food, but I am 5'1 and 100lbs. I was decently healthy.
Hay gurl. /s Seriously though, I'm 22 and I feel like I'd just shut down and mope if I ever got news like that. I fall into the "complains about silly things" camp. I will keep you in my prayers. Your smile says you're a fighter! Edit: how much did the first tumor weigh?! I'm curious. Don't worry. Everyone complains! I really wish I knew how much that tumor weighed! It is far away in a lab somewhere now.
My stomach is unusually large. I'm starting to suspect I have the same thing. Do you have trouble breathing ? If you honestly suspect you have the same thing, you should get to a doctor. If not, you might want to eat some green leafy vegetables.
True strength can often be quite a sight to behold. Thisisareddituser put into words how we all feel, reading through this post. You are a strong and beautiful young woman. Now, some questions of my own, if you don't mind! Tea or coffee? I like both tea and coffee, but you will find me drinking coffee much more often.
Are you in pain? Ps. You're gorgeous. Good luck! I am really not in much pain at all. That is part of what makes the tumor so sneaky. It's hard to say what it's doing without regular scans. Thanks a lot!
Julia? Who wants 2 kno?
You seriously don't know? Think harder! Do I talk to you regularly? Did I stop talking to you long ago? Are you my stalker?
Well, Duh! We used to hang out all the time! I'm still quite unsure.
Don't know if this helps. From here. I'm a 22 year old male working at an IT company. From here. I used to work at KFC. Apparently attended the University of British Columbia. Hm, still no idea! Thanks for taking the time to look into that!
I'm probably a bit late to this, but couple questions. Are you just incredibly unlucky that it came back or was that always a possibility? And favourite tv shows? I only watch good tv so if you want any recommendations I'm your man! Never too late! I have been known to have pretty bad luck, but the recurrence rate for this tumor is a bit high at 30%.
Also, my favorite shows are Desperate Housewives and Supernatural. What do you reccommend?
I know its a bit late, but what is your favorite cereal? I love Frosted Mini Wheats. They have perfect texture when they soak up the milk.
I didn't think you would actually reply, thanks a lot! Mini Wheats are pretty good, I personally enjoy Rice Krispeys. Anyways, Hope you have a life that looks up for you. I have been a night owl lately, probably from playing League of Legends so much. I'm no celebrity or anything, so I cherish every comment and question I get. Thank you!
So are these cancerous tumors that you are getting? Also, you are very pretty! No, desmoid tumors are benign and tend to be slightly less aggressive than cancer since cancer cells can spread quickly without warning. The tumor is "insidious" as one website says, but at least it is a solid mass that is more noticeable as it grows. I would definitely be gone by now if it weren't benign, so I feel lucky!
Is it true you have a dermal implant or is the xray tech full of shit? I am really not sure about that. I believe it is a cyst on my ovary, but the radiologist report was kind of vague.
Ah ok, can't imagine the feeling when you found it was back. Apart from the fact you like Desperate Housewives you seem pretty cool! The whole of Reddit would recommend Game Of Thrones and i'm not going to disagree! Luther (A British crime programme) is very good as well. And I know you've said the tumour doesn't generally hurt that much but do you have to be careful not to like bump it? Like if a football (soccer ball for you Americans) hit it would it be complete agony? Hey, I am a young woman and reserve the right to enjoy Desperate Housewives! :)
It doesn't hurt too much to bump it, not that I've tested it that much. However, I can't lie on my stomach on a hard surface or the tumor pushes into my back and hurts a lot. I had to do that yesterday for about 20 minutes without pain meds while I was in position for my nephrostomy. I had to lay like that while the radiologist explained the prcedures he was going to perform. I couldn't wait for him to quit talking and give me some relief. It was pretty painful.
Best of luck for your surgery. You're a brave and beautiful girl! How were you first diagnosed when you were thirteen? Were there any notable symptoms? I went in for a regular check up, and my pediatrician found a lump when she was feeling my abdomen. She referred us to a surgeon and I had spent 9am-4pm getting test after test. They weren't sure if it was cancer or not until my biopsy was done. My surgeon accidentally cut my colon while trying to take a slice of the tumor for testing. I was in the hospital for 9 days without being able to eat. After that surgery, we got the diagnosis and started a clinical trial/protocol to treat it.
You poor thing. It's really fortunate that your paediatrician found it so early on. Have you had your surgery? How did it go? I just got a stent in my vena cava and a nephrostomy yesterday. My next surgery to take out part of the tumor should be soon. I am taking it one day at a time so far!
Do you/Will you need dialysis? I don't currently, but that remains to be seen after my procedures today. The stint in my inferior vena cava and nephrostomy are supposed to save my kidney to prevent that.
You're incredibly brave, you know? You've got such a positive and upbeat look on things! You'll go far with a wonderful attitude like that! The best of luck to you with everything! If I weren't brave and positive, I would let my illness own me. I can't allow that! Thank you!
What's one average thing that you'd love to do but cant do? I wish I could wear a bikini, but I don't think I would show my scars and tumor to the public without being able to explain myself.
Who cares what others think?! If you want to wear a bikini then go for it! I gotchyo back gurl ;) Thanks! My scars have just always been something I am self-conscious about for some reason. I shouldn't be afraid to show them because they represent my character and what I've been through, but I just never liked to share my experience with people unless I really felt like they deserved to know.
Are you getting surgery again? Yes, my next surgery will be to "debulk," or remove, part of the tumor to relieve some of the pressure it is putting on all my vital organs and blood vessels. After that, I should be put on a different treatment before I have surgery to remove the rest of it once it is small enough.
Are you single? :P Lol. Fortunately for me I am not single, and I have a great support system.
that is unfortunate for everyone else here. xD. Haha sorry! My life is a bit complicated anyway.
Sorry for being so blunt; what are your odds? God bless you. ♡ No one has discussed any odds with me, so I feel good about my chances. I definitely have plans for when all this is said and done.
Since the first tumor was removed, what's keeping them from just removing the second one? I had to go through two years of treatment before removing the first tumor, which was about half the size of the current one. Even then, the surgery was 12 hours.
We can't just remove this one right now because it is right on my vena cava and only remaining kidney. Removing it without treatment would be too dangerous for me at the moment.
Does it feel the same as a normal belly button? :O That is so odd! It does feel and look the same. It just has a scar right next to it that makes one side of it a little less round.
Hey are you pregnant? HI, nope. There is no room for a baby in there!
Can't read AND made an account just to ask that. It was a friend :)
Im in college as well, am graduating next year with a hope to one day go to med school and be an oncologist. I wanted to know from a patient's point of view, what do you think are the most important qualities to being a good oncologist besides knowing the medicine/science well? What is one thing that you could change for the better about medical care in the States if you could? The best oncologists are good listeners and care about their patients' peace of mind. For instance, my oncologist scheduled me a scan for 2 months, changed it to 3 weeks after I asked for one sooner, then after our appointment, he called me from his personal phone and said he moved the CT scan for the following week just because I said I felt a little worse than before. Lucky for me, that scan showed that the tumor was still growing and causing fluid to build up in my kidney.
The worst thing about health care in the U.S is obviously the cost. Everyone has the right to health care and it shouldnt cost $8000 to go to the ER and essentially be neglected if you're not bleeding all over the place.
All this to convince your boyfriend you aren't pregnant... Haha, if only I could carry a child in the upper left quadrant of my abdomen.
That is too kind and unnecessary but thank you for the offer. That is so nice. I am sorry you have to go through that. I have a feeling I am at that place you go to right at this moment! And my chemotherapy is in pill form. I am taking an anti-inflammatory called Sulindac, but that will be changing soon since it has not been effective.
I have no questions.. But I just want you to know that I think you're god damn beautiful. And excuse my language but fight that mother fucker with all you got!! Thank you. You're too kind, and I am grateful for the questionless comment!
A friend had stomach surgery that removed among other things, his belly button. The surgeon reconstructed it in the new skin. I told him that he should convince the surgeon to skip that part and just leave smooth skin. It would eliminate the problem of belly button lint. Haha! It would be so strange not to have a belly button. I am glad they gave me a new one.
Did you ever have to use the phrase, "It's not a baby, it's a tumor!" {shameless Hellboy sorta quote there. ;) } Haha nope, thankfully! I bet that would be embarrassing for someone mistaking my tumor for a baby.
No questions. Just survive and have a good life. Thank you! I hope you also have a good life.
I wish you the best of luck. You're probably sick of hearing this but youre beautiful. No one gets sick of that. Thank you!
I'd bone you. You still got it. Hey, I do appreciate that!
You're beautiful. Thank you so much. That makes me feel so nice!
I had a Neprhostomy tube for like 8 months due to some ureter issues, they are not very comfortable but they are not the worst. The only thing that would drive me crazy was, all the urine was going through the tube, so for months I didn't pee. I really hope everything works out ok for you. Ah, sorry you had to have that, but you're right. It isn't the worst thing you can have. I have had things similar to this when I had to drain an abscess on two separate occasions. The fluid drained into a bag that I had to periodically empty. I actually don't mind not having to pee, though I would prefer not to have the nephrostomy, of course. So far so good, though!
I don't have a question ATM, but I did just want to say that I think you're incredibly brave for continuing to move forward in your life, and to do this AMA. Keep looking on the bright side, and best of luck to you in the future! Thank you very much. I really wanted to share my experience this time around, and I hope people can get something out of it.
Ps: I just have to say these CT pictures look more like you're a tumor with a human and not a human with a tumor :p. I'm not sure about your circumstances, but that really doesn't matter. Just surround yourself with positive people, have a good attitude,do things that make you happy, and be good to others. It is easier said than done, but it seriously makes all the difference. Whatever issues you may be going through now do not matter at all in the grand scheme of things. Hope my story can help put things in perspective for you. Good luck!
Hi Julia! I saw you posted this on facebook and though you probably don't remember me (katie from gdc) i just wanted to say I've been praying for you and hope all goes well! Wow, GDC. Of course I remember you! Thank you very much. I truly appreciate that you're praying and thinking of me.
Just came to thank you for doing this AMA and wish you the best of luck. It's been really hard for me since my uncle died of a brain tumor, so fingers crossed :) Sorry for your loss. It is definitely not a fun experience for anyone involved. Thank you very much.
Oh no! You asian gurlll. Good luck Julia. Thank you. You don't know whether that's my real name or not.
So, can you...you know...do it? Well, yes.
Last updated: 2013-08-06 09:48 UTC
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